A Slice of Thank You
Last week’s cover story, “The Worst Thing Since Sliced Bread,” generated plenty of chatter on the Press website. Here is a sample of the comments.
Thank you for this wonderful article! Being a rather newly diagnosed celiac, it is great to see someone who is understanding of the disease. It is difficult to adopt to a gluten-free life, especially when you are big on texture. That is a huge problem for me. It is discouraging to hear people say that a little gluten will not hurt you, especially when they are in the medical field. So far I have run across this. It is upsetting that our doctors don’t know enough about celiac to properly discuss it with their patients.
Thank you for taking the time and energy to write such a wonderful article.
Michelle
More fear to our citizens. Remember swine flu? Remember west nile? Remember bird flu? Remember the killer bees? Remember every news station covering this story and the panic that most people (not me) went through? Remember when kids could eat peanut butter? Please, fake diseases (for the most part) are nothing to panic about. It’s like the majority of citizens want something bad to happen to them. WAKE UP!
George Mason
I am glad to see this article in LIP.com. For many people living with celiac disease and a variety of other auto-immune disorders, the common American lifestyle poses certain challenges both in terms of the foods and treatments available. I certainly hope new efficient means to diagnose such disorders will arise soon.
Yannick Tessier
This is one of the better written and more informative articles I’ve read in the press. It’s nice to see some light shed on this VERY painful and VERY frustrating condition.
Tobas
I just wanted to thank you so much for this article. I would love to share my horror story with you. In 2005 I was diagnosed with celiac disease, in 2006 when a doctor could not figure out what was wrong with my child, they blamed me for “making up” his illness and I lost both of my children to [Child Protection Services]. It was the worst few years of our lives and was later discovered that he had celiac all along, and that the doctor was covering up a malpractice lawsuit. Long story short, four years later we are broke after paying 300K in legal expenses because a doctor made a mistake. The bright side: My son is thriving and doing absolutely amazing living a gluten free life. I fear that there are so so many families that might be torn apart like we were because doctors just don’t seem to understand celiac.
Celiac Mom
I think it is a trend right now. There are only around 40,000 truly diagnosed celiacs in the USA right now. Most people self diagnose after their tests turn up negative. That many doctors can’t be all that wrong!
My doctor had no trouble diagnosing me at all. I have severe malnutrition and vitamin deficiencies. I had a very positive small bowel biopsy. It took me more than a year to get better. My health will never be 100 percent because I was so damaged.
Fancy Nancy
